How to get a solidarity bib?

NO SOLIDARITY BIB LEFT FOR THE GRAND RAID FOR THE TIME BEING!!!

BUT 10 ADDITIONAL SOLIDARITY BIBS FOR THE TRAIL DE BOURBON !!!

You make a donation at the French Foundation for Rare Diseases and the board GRAND RAID REUNION will give you a START NUMBER 100% GUARANTEED (providing you are pre-registered until 19th March – see below on this page “How to proceed”, your qualification points are collected and medical certificate validated).

 

4 BENEFITS:

1 – NO OBLIGATION TO BUY A PACKAGE WITH THE PARTNER TRAVEL AGENCY: YOU ARE FREE TO CHOOSE YOUR OWN TRAVEL SOLUTION!


2 – YOU WILL BELONG TO A GREAT TEAM AND GIVE A HUMAN FACE TO YOUR OWN CHALLENGE


3 – ON TOP: YOU DONATE TO SUPPORT RESEARCH ON RARE DISEASES…


4 – … AND YOU WILL RECEIVE A TAX RECEIPT ENABLING YOU TO BENEFIT FROM A TAX EXEMPTION:

France: around 66% as a private person / 60% if payed by a company.

Ex: as a private person, for a donation of 1000 euros, the real spending is 340 euros.

Europe and other countries: this tax exemption is applicable to many foreign countries, but the rate may change. To get detailed information,  please get in touch with Anne-Sophie from the FFRD, e-mailing her at:      anne-sophie.blancher@fondation-maladiesrares.com

 

WHAT IS OUR CONCEPT?

  • AGREEMENT WITH GRAND RAID REUNION BOARD

The GRAND RAID BOARD is supporting us: support from GRAND RAID

We got a generous agreement with the board of GRAND RAID REUNION, accepting to support our project with the French Foundation for Rare Diseases, and giving thus the chance to runners to avoid the package booking or the lucky draw barrier, guaranteeing them a start number.

  • WHO IS BENEFITING FROM YOUR DONATION?

Plenty of internet sites are expecting people to donate as there are indeed plenty of causes and associations to support. Therefore, we wanted to INFORM VERY PRECISELY a potential generous donor about the destination of the donation:

          ◊ How are used the donations? Who are the award recipients? What is the status of the researches? All the information about the French Foundation for Rare Diseases are on the page FFRD.

          ◊ The page A rare disease: RTS will also provide you with an interview that we had (thanks to our female team mate, being also a doctor) with the team of the CHU in Bordeaux – the reference centre for Rubinstein-Taybi Syndrome, giving an example of the fantastic work which is enabled by donations to FFRD.

          WE ARE NOT INTERMEDIATE RECEIVERS, THE DONATIONS ARE DIRECTLY DONE TO FRENCH FOUNDATION FOR RARE DISEASES   (see How to support the Foundation?)

 

HOW TO PROCEED?

PLEASE STRICTLY FOLLOW THE SEQUENCE BELOW

1° You have to be pre-registered (Grand Raid) on their site , for the Trail de Bourbon you have to be pre-registered or pay the registration fees on their site.

2° You create your free WordPress profile and inform us on this blog, letting a comment, or you inform us by e-mail at jpm.nz.88@gmail.com, that you wish to donate 1000 Euros to French Foundation for Rare Diseases and benefit from a guaranteed bib number (providing you satisfy to the qualifications points of the GRAND RAID REUNION and provide them with a validated medical certificate – see details here ).

DONATIONS:

For a solidarity bib for the GRAND RAID, the donation to FRENCH FOUNDATION FOR RARE DISEASES is 1000€ (340€ after tax exemption in France – for other countries please check the exemption rate with Anne-Sophie from FFRD – see below).

For a solidarity bib for the TRAIL DE BOURBON, the donation to FRENCH FOUNDATION FOR RARE DISEASES is 400€ (136€ after tax exemption in France – for other countries please check the exemption rate with Anne-Sophie from FFRD – see below).

IMPORTANT: Please wait that we confirm you that we have some remaining solidarity bibs.  DO NOT PROCEED TO THE DONATION BEFORE HAVING RECEIVED OUR CONFIRMATION, we would not be able to guarantee your participation to the races.

For a solidarity bib for the GRAND RAID:

4a Once you have received our confirmation that we have some remaining solidarity bibs ONLY  :

          OPTION 1: 1 donation of 1000€

You proceed to the 1000€ donation to the French Foundation for Rares Diseases within one week (see here). Do not forget to mention that your donation is linked to MILLION STEPS project.

          OPTION 2: 2 donations of 500€

If you wish to donate in 2 steps: you proceed to a 1st 500€ donation to the French Foundation for Rares Diseases within one week (see here). Do not forget to mention that your donation is linked to MILLION STEPS project. And you proceed to the 2nd 500€ donation before end of May 2019.

For a solidarity bib for the TRAIL DE BOURBON:

4b Once you have received our confirmation that we have some remaining solidarity bibs ONLY  :

You proceed to the 400€ donation to the French Foundation for Rares Diseases (see here). Do not forget to mention that your donation is linked to MILLION STEPS project. Deadline for the donations is end of April 2019.

Rem: If the 400 € donation is not performed within this period, we will not be able to confirm your participation to the race.

5° Once your donation linked to Million Steps project is received by French Foundation for Rare Diseases, the Foundation will inform you that your donation has been received and your data transmitted to Grand Raid Réunion registration board, which will confirm your bib number (under the conditions of qualification points collected and medical certificate validated).

6° You will receive from French Foundation for Rare Diseases a tax receipt enabling to benefit from tax exemption has explained here above.

7° As soon as the bib numbers have been attributed, we will indicate it on the top of this page.

8° If anything is not clear for you regarding the donation process for French Foundation for Rare Disease or if you have additional questions, please get in touch with Anne-Sophie, mailing her at  anne-sophie.blancher@fondation-maladiesrares.com.

N. B.: EVEN IF YOU DO NOT INTEND TO RACE WITH US UNTIL YOUR VERY LAST PIECE OF ENERGY IN REUNION ISLAND, YOU CAN STILL SUPPORT THE FRENCH FOUNDATION FOR RARE DISEASES, GIVING WHATEVER YOU WISH. EACH DONATION MATTERS 🙂